Question:

So, I saw my GP…all docs should be like him.  He gave me a prescription for an at home nebulizer….the kids of course think it is cool.  Thank goodness I will not have to go to the er everytime this happens. As for asthma….he agreed…it could be ms but we will never know…besides the treatment is the same as the can not treat the brain stem.  That i understand and agree with…i just wanted someone in the medical field to listen and tell me i was not crazy……it can cause this. My gp has seen me in respitory distress before and knows it also coincided with back pain….lack of coordination etc.. in the past.  He agreed could be either….that is nice when a dr admits….it could be whatever…we treat it this way.  that i can understand. so, a new thing goes on my medic alert necklace….asthma…i have to play the insurance game to get it covered of course!  they treat it the same anyways….will help my kids to know this is listed too. Take Care : ) JD jdgargoyle <jdanel…@powernetonline.com> wrote in message

news:vWxR4.1411$[email protected]…

Response:

It’s good that you have the nebuliser.  I have one too, and (thank goodness) took it on holiday with me.  Without it I would have ended up in hopsital too.  I don’t like it, but have to admit that it can literally save your life – as my GP has been at pains to drum into me!! It will make life a bit easier for you.  Take care.   Carmel – Hide quoted text — Show quoted text -jdgargoyle wrote: > So, I saw my GP…all docs should be like him.  He gave me a prescription > for an at home nebulizer….the kids of course think it is cool.  Thank > goodness I will not have to go to the er everytime this happens. > As for asthma….he agreed…it could be ms but we will never know…besides > the treatment is the same as the can not treat the brain stem.  That i > understand and agree with…i just wanted someone in the medical field to > listen and tell me i was not crazy……it can cause this. > My gp has seen me in respitory distress before and knows it also coincided > with back pain….lack of coordination etc.. in the past.  He agreed could > be either….that is nice when a dr admits….it could be whatever…we > treat it this way.  that i can understand. > so, a new thing goes on my medic alert necklace….asthma…i have to play > the insurance game to get it covered of course!  they treat it the same > anyways….will help my kids to know this is listed too. > Take Care : ) > JD > jdgargoyle <jdanel…@powernetonline.com> wrote in message > news:vWxR4.1411$[email protected]…

– " Don’t wait for a light to appear at the end of the tunnel.   Stride down there and light the bloody thing yourself." www.cyberwizards.com.au/~carmel www.cyberwizards.com.au/~jaragun

Response:

Just 3 weeks ago I woke unable to breath or move. At first I just assumed I was still sleeping. By the time I could breath a little and move not much, I realized I was a wake. The doctors at the ER said I had a MS induced seizure. I have been having seizures for months off and on. Lucky I had for got to put the phone on the base. I dialed Mom and said help. It’s scary, I had been telling both Neuro doctors I thought MS was messing with my breathing. Both said not likely. Guess the story will change now! lol  John peacelovehopehealthhappinesshealingcurescaresconcernscommunityribbons and condoms for those in need ! Huc…@aol.com

Response:

on saturday I spoke to the nuero on call and he stated that it was not true ms was messing with my breathing….if that were true I would be paralyzed….sorry, i beg to differ mr nuero….you have never even layed eyes on me! Huck4u <huc…@aol.comNoSpam> wrote in message

news:[email protected]… – Hide quoted text — Show quoted text -> Just 3 weeks ago I woke unable to breath or move. At first I just assumed I was > still sleeping. By the time I could breath a little and move not much, I > realized I was a wake. The doctors at the ER said I had a MS induced seizure. I > have been having seizures for months off and on. Lucky I had for got to put the > phone on the base. I dialed Mom and said help. It’s scary, I had been telling > both Neuro doctors I thought MS was messing with my breathing. Both said not > likely. Guess the story will change now! lol  John > peacelovehopehealthhappinesshealingcurescaresconcernscommunityribbons and > condoms for those in need ! Huc…@aol.com

Response:

http://www.albany.net/~tjc/breathing.html  woo hoo….see we are not crazy! And to think that ER doc said my brain has nothing to do with my lungs! loser! Take Care : ) JD Thank you nygabnet for the tip! jdgargoyle <jdanel…@powernetonline.com> wrote in message

news:ZdzR4.1414$[email protected]… – Hide quoted text — Show quoted text -> Carmel > this is how i feel….i know you too have uncontrollable bronchial > spasms….yes traditional meds do help….albuterol…etc…diagnose me with > asthma too…..i’ll play the insurance game to get a tank of oxygen and > albuterol treatments for myself at home as necessary so i don’t have to find > a babysitter for my kids…and have a ride to the er…i am really starting > to hate how dependent i am on others now….i have always been a strong > independent women…yikes.,……psych ward here i come! > Take Care : ) > JulieD > CPD <car…@cyberwizards.com.au> wrote in message > news:[email protected]… > > so sorry to hear about your awful time in ER.  Sorry things have to be > > this bad for you, too.  My heart goes out to you, and your daughter.  I > > also have asthma, that I don’t really believe is asthma.  But asthma > > meds do help a bit, so I have to go along with it, since I have no other > > answer.  Hope you’re feeling better soon. > > Love > > Carmel > > jdgargoyle wrote: > > > Hi all > > > i spent my sunday in the er….couldn’t breath. > > > Stupid drs…..I brought my medical information and they wouldn’t even > look > > > at it…… > > > This past week I also saw an eye dr who was very knowledgeable about MS. > He > > > told me based on the muscular damage to my eyes and pupil reaction time > > > etc….I have probably had MS 15 to 20 years. (i was diagnosed 1 year > ago, > > > but same old story, had problems for years)  He also stated it is > effecting > > > my autonomic(sp) nervous system.  The system that

moderates….exhaling – Hide quoted text — Show quoted text -> and > > > involuntary actions….focus…..removing liquid from the bowels etc…I > > > have (excuse me) bright green diarrhea….no appetite……no focus > control, > > > irregular blood pressure( it goes up, down up, down)  severe muscular > damage > > > to my eyes etc… > > > I have many lesions…one of which is on the brain stem in the pons > area.  I > > > explained this to the ER doc…she said I have asthma!  You are a smoker > and > > > this has given you an asthma attack.  My husband cracked up laughing. > He > > > said….that would be great EXCEPT the fact I hadn’t smoked in 4 > > > days…couldn’t.    …..no I do not….it is my brain!  she said > > > impossible.  OK….so your lungs now operate all on there own.  the dr > > > argued and got angry…went away and never came back!  I was discharged > by > > > the nurse. > > > I spoke to the nuerologist on call and he said….if MS was really > affecting > > > my autonomic nervous system I would be paralized……I say > > > bullshit…..just cause n stage ms USUALLY occurs after paralyzations > does > > > not me is HAS to occur at this time…. > > > Every time I would exhale I would choke and wheeze…..hmmmmm.sounds > like > > > the pons.  I know there are others in the group that also suffer from > what > > > the call "asthma"  or IBS or a number of other things.  Bullshit I > say….it > > > is our brains malfunctioning in my case at least…..in a year I have > now > > > found out…..I was born with a stygmatism in both eyes…i have IBS, i > have > > > asthma….I have blah, blah blah…..all in a year of active ms > progression. > > > They took chest xrays again…nothing found. no surprise to me there. > > > Why can’t drs just see clearly?  If my mother board is fucked on my > computer > > > with a short in it…..for all you techno gurus out there……and my > modem > > > goes….I replace the modem it will work for a while and than goes > > > again…..was that the problem?  I think NOT!  I use this comparison > > > often….computer and the human brain.  very similar. > > > Well, they gave me the usual treatments of albuterol  and oxygen for > > > breathing difficulty and it has temporarily diminished the problem.  I > slept > > > last night for the first time in 4 nights. Yippee…too bad I don’t feel > > > like I did….oh yeah…that must be CFS.  NOT! > > > I am going to see my GP today….he listens and I have known him the > > > longest…he has assisted on both of my back surgeries…he has seen me > in > > > respitory distress before and said I would call it asthma except it > doesn’t > > > SOUND like asthma…..er doc said the same thing….didn’t exactly SOUND > > > like asthma…but she’s a smoker…that is what we will call it. > > > Temperature increase in wisconsin…i can not focus, breathe, > etc……Why > > > is it so hard for them to put 2 and 2 together and equal MS?  At this > point > > > I just want someone in the medical community, besides my brand new eye > dr, > > > that agrees with me… > > > My MS is not normal….progressing very fast….my family is terrified > and > > > no one will listen.  I know there is nothing that can be done….i have > read > > > this newsgroup for over a year and spent on the average 20 hours a week > > > reading about this damn disease for the past year!  Allot of the > research I > > > read is from this NG…people who have spent more than a year > researching > > > MS…I am coming to the same conclusion my husband is…..we know more > than > > > they do!  We are intelligent people(steve and I my hubby) who like the > > > truth….we know we have the "smarts" to have been drs if we had chosen > that > > > path in life.  We just think it is bullshit they can’t see the obvious. > We > > > just want them to stop diagnosing me with other diseases and admit the > > > truth! > > > I cried for hours at the hospital because my 7 year old is terrified her > > > mommy is going to leave soon…for good.  I feel so bad for her….I am > > > crying again…poor kid just wants her Mom back and is angry!  School > won’t > > > listen to her pleas for help just like the drs don’t listen to me. They > are > > > saying maybe her behavior problems are add or adhd related….lets drug > her > > > to control her!  BS!  she is an extremely scared smart intelligent first > > > grader who performs mathmatic functions of a 3rd grader….reads at a > fourth > > > grade level etc…OR she is depressed and lashing out for attention > because > > > she is SCARED…her mommy is dying!  I have been sick all of her > life…..i > > > haven’t been able to lift her since she was 1 years old…poor > girl….so > > > unfair.  that is how she feels….I am getting a professional for her to > > > talk to today…someone who deals with families with terminal illnesses > > > etc…. > > > Well, i could go on and on…thank you for listening…i hope all is > well > > > with everyone. > > > Take Care : ) > > > JD drowning in a sea of bull shit! > > — > > " Don’t wait for a light to appear at the end of the tunnel. > >   Stride down there and light the bloody thing yourself." > > www.cyberwizards.com.au/~carmel > > www.cyberwizards.com.au/~jaragun

Response:

I have done considerable reading, with regards to MS, and have arrived at some well supported conclusions that may be helpful even if they first appear somewhat novel. The conclusion I arrived at is that MS worsens if the immune system is overburdened by a specific insult such as an infection, dietary sensitivity, allergy, etc. MS also worsens if ones immune system is overburdened by being ‘out of shape’ , like a couch potato doing the New York marathon. I learned early that my MS is sensitive, regarding things that bother it, to a degree that is far beyond what would otherwise be expected. I.E. a tooth that x-rays as being healthy but very minor symptoms and my MS told me it was bad. It cost me $300 and a bit of my health to prove I was right. An ingrown toenail which was causing a very slight inflammation made my MS worse. A number of times I went to my Dr. with a bladder infection only to test negative until a day or two later. Fortunately I learned how to resolve bladder infections in 30 min. and could recognise them very early by paying attention to urgency, frequency, volume, colour of urine, etc. With proper nutrition, elimination of immune system burdens and boosting the capacity of the immune system, it is my belief that most people with MS can positively influence their MS.

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